In 2021, my life was turned upside down when I received an extremely rare diagnosis of high-risk neuroblastoma as an adult. A quick surgery removed my initial tumor, but the cancer returned in metastatic form in December 2022. Faced with a daunting prognosis, I began undergoing high-dose pediatric regimens of treatment with experts at CHOP. The journey was grueling, culminating in a 3-week bout of temporary paralysis after an acute transverse myelitis attack as a side effect of immunotherapy.
With the help of experimental targetted therapies like Lorlatinib, I once again have hope for a long life. The cost of the drug is $30,000 a month without insurance, and is necesarry for me to continue surviving. I am only able to afford the medicine thanks to the ingenuity of my oncologist, Dr. Rochelle Bagatelle, who I will be joining in August.
On the 1-year anniversary of my hospital stay I want to bike the entirety of my childhood home with my oncologist, and raise as much money for cancer research in the process as possible.
In 2021, my life was turned upside down when I received an extremely rare diagnosis of high-risk neuroblastoma as an adult. A quick surgery removed my initial tumor, but the cancer returned in metastatic form in December 2022. Faced with a daunting prognosis, I began undergoing high-dose pediatric regimens of treatment with experts at CHOP. The journey was grueling, culminating in a 3-week bout of temporary paralysis after an acute transverse myelitis attack as a side effect of immunotherapy.
With the help of experimental targetted therapies like Lorlatinib, I once again have hope for a long life. The cost of the drug is $30,000 a month without insurance, and is necesarry for me to continue surviving. I am only able to afford the medicine thanks to the ingenuity of my oncologist, Dr. Rochelle Bagatelle, who I will be joining in August.
On the 1-year anniversary of my hospital stay I want to bike the entirety of my childhood home with my oncologist, and raise as much money for cancer research in the process as possible.
Thank you for being a part of #TeamIan!
My Supporters
My History
2024
$7,388.00
Bourne to Provincetown Inn (1-Day, Sun)
2023
$437.27
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